gantt
title CancerSurv Implementation Timeline
dateFormat YYYY-MM
section Planning
Needs Assessment :2025-01, 2M
Requirements Gathering :2025-02, 3M
section Development
Core Platform :2025-04, 4M
Interoperability :2025-07, 3M
Analytics :2025-09, 2M
section Deployment
Pilot Testing :2025-10, 2M
Training & Rollout :2025-11, 3M
section Evaluation
Post-Implementation :2026-01, 3M
4.1 The CancerSurv Case Study
Throughout this book, we use a single comprehensive case study to illustrate concepts: CancerSurv, a cloud-based cancer surveillance and registry system. This chapter introduces the project context, stakeholders, and objectives that will appear in examples across all subsequent chapters.
4.1.1 Project Overview
A state public health department partners with TechHealth Solutions, a health IT company, to develop CancerSurv: a modern, cloud-based platform for cancer surveillance and registry operations.
4.1.1.1 The Business Context
| Attribute | Detail |
|---|---|
| Public Health Partner | State Cancer Registry (Department of Health) |
| Technology Partner | TechHealth Solutions (cloud software vendor) |
| Funding Source | CDC National Program of Cancer Registries (NPCR) grant |
| Timeline | 18-month phased implementation |
| Scope | Replace legacy mainframe system with modern cloud solution |
4.1.1.2 The Public Health Context
Cancer registries serve a critical public health function. They collect, process, and analyze data on cancer incidence, treatment, and outcomes. This data informs:
- Prevention program targeting
- Early detection initiatives
- Health disparity identification
- Research and clinical trials
- Healthcare resource planning
The state’s current system, built on 1990s mainframe technology, cannot meet modern demands for interoperability, real-time analytics, and remote access.
4.1.2 Stakeholder Landscape
Understanding who participates in this project requires seeing stakeholders through both BA and PH lenses:
| Role | BA Term | PH Term | Key Concerns |
|---|---|---|---|
| Project Sponsor | Executive Sponsor | Registry Director / State Epidemiologist | Budget, timeline, CDC compliance |
| End Users | System Users | Cancer Registrars, Epidemiologists, Data Analysts | Usability, efficiency, data quality |
| Subject Matter Experts | Business SMEs | Oncologists, Pathologists, Tumor Board Members | Clinical accuracy, coding standards |
| External Partners | Vendors / Integrators | Hospitals, Laboratories, Vital Records | Data submission, interoperability |
| Oversight Bodies | Governance Board | NPCR Program, NAACCR Standards Committee | Standards compliance, data quality metrics |
While we use “stakeholder” here for its familiarity in BA contexts, public health practitioners often prefer alternatives: community partners, interest holders, rights holders, or beneficiaries. The choice of term signals values: “stakeholder” implies an interest or stake, while “rights holder” acknowledges inherent claims and dignity. See Chapter 3 for detailed discussion.
4.1.3 System Functions
CancerSurv must support five core functional areas:
4.1.3.1 Case Abstraction
Cancer registrars enter and code cancer cases from medical records. This involves:
- Extracting relevant data from pathology reports, discharge summaries, and treatment records
- Coding diagnoses using ICD-O-3 (International Classification of Diseases for Oncology)
- Staging tumors using TNM and SEER summary staging
- Linking cases to patients across multiple treatment facilities
4.1.3.2 Data Quality
Automated processes ensure data completeness and accuracy:
- Edit checks flagging inconsistent or missing data
- Duplicate detection identifying potential duplicate case records
- Linkage to vital records for death clearance
- Inter-rater reliability monitoring
4.1.3.3 Reporting
The registry must meet external reporting requirements:
- Annual submissions to NPCR (National Program of Cancer Registries)
- Data exchange with SEER (Surveillance, Epidemiology, and End Results Program)
- Ad-hoc queries for researchers (with appropriate IRB approval)
- Public health reports for state legislature and media
4.1.3.4 Analytics Dashboard
Modern surveillance requires real-time analytics:
- Cancer incidence trends by site, stage, and demographics
- Geographic mapping of cancer clusters
- Survival analysis and outcomes tracking
- Health disparity indicators
4.1.3.5 Interoperability
CancerSurv must integrate with external systems:
- HL7 FHIR APIs for hospital EHR integration
- Electronic pathology reporting from laboratories
- Vital records linkage for death data
- National data exchange protocols
4.1.4 Project Phases
The 18-month implementation follows a phased approach, which we will revisit throughout the book:
4.1.5 How CancerSurv Appears in This Book
Each chapter includes CancerSurv examples demonstrating concepts in practice:
- Planning (Chapter 4): Needs assessment comparing cancer data gaps with CDC reporting requirements
- Elicitation (Chapter 5): User stories from registrars; clinical guidelines from oncologists
- Requirements (Chapter 6): Functional specifications for case entry; NFRs for HIPAA compliance
- Design (Chapter 7): System architecture; CFIR implementation readiness assessment
- Implementation (Chapter 8): Agile sprints mapped to grant milestones; PDSA cycles for workflow adoption
- Evaluation (Chapter 9): KPIs (data completeness ≥95%) mapped to health outcomes
When reading subsequent chapters, refer back to this overview to ground abstract concepts in the CancerSurv context. The case study makes the BA-PH bridge tangible.
4.1.6 The Dual Mandate
CancerSurv illustrates the fundamental tension bridged by this book. The project must simultaneously satisfy:
Technology Requirements:
- Modern cloud architecture
- API-first design
- Agile delivery methodology
- Vendor best practices
Public Health Requirements:
- CDC/NPCR compliance
- NAACCR data standards
- HIPAA security
- Health equity focus
Success requires translation between these worldviews. That is what Bridgeframe provides.